Transforming Care: Review of Respite Services for People with Learning Disabilities and Complex Needs

NHS South Tees Clinical Commissioning Group and NHS Hartlepool and Stockton-on-Tees Clinical Commissioning Group (‘the CCGs’) are working together to carry out a review of health respite services for people with learning disabilities and complex needs, and their families and carers, across Teesside.

The review will focus on health respite services for people with complex needs. There is an Easy Read summary of the review in the document below.

Easy Read Document – Review of Respite Services for People with Learning Disabilities and Complex Needs

The CCGs are working in partnership with the four Local Authorities across the South Tees and Hartlepool and Stockton-on-Tees areas to ensure that the review considers complex health and social care needs.

The review will ensure that health respite services appropriately meet the needs of the local population now and into the future. It is being carried out in the context of the Transforming Care programme.

Transforming Care is a programme of work to enable more people with learning disabilities and/or autism who have complex needs to live in the community, with the right support and close to home. More information about Transforming Care is available on the NHS England website or the North East and Cumbria Learning Disabilities Transformation Programme website

Both Transforming Care and the NHS Five Year Forward View include a strong emphasis on personalised care and support planning, personal budgets and personal health budgets to put people at the centre of their care to enable maximum choice and control about how their own needs are met.

The review of health respite services for people with learning disabilities will help the CCGs to make sure that families and carers of people with learning disabilities and complex needs are supported, valued and recognised within their roles.

As part of the review, the CCGs want to talk to people with learning disabilities and complex needs, and their families and carers, to understand more about:

  • What the expression ‘respite services’ means to them
  • What they think works well with current respite services
  • How they think respite services could be improved.

Engagement activity will take place from December 2016 until the end of February 2017. This will include discussion groups and questionnaires. The aim is to ensure that people with learning disabilities, their families and carers are influential in the development of appropriate services to meet their needs now and into the future.

To ensure that people with learning disabilities and complex needs can have their say, the CCGs are working in partnership with Inclusion North, a not-for-profit organisation that promotes the inclusion of people with learning disabilities, their families and carers.

There is a questionnaire for families and carers. This can be completed online here. If you would prefer, you can download and print off a copy below and return in to the FREEPOST address on the questionnaire (no stamp required). Alternatively, printed copies are available on request using the contact details below.

Questionnaire for families and carers

The engagement activity will help to inform the development of a number of possible ‘scenarios’ for the provision of health respite services for people with learning disabilities in the future. These scenarios will be ideas on how learning disability respite services could be further developed or delivered differently to best meet the needs of the local population.

It is important to note that there will be no fundamental change to the type of respite services currently available for people with learning disabilities while this review is conducted. Following the review, scenarios that are developed that are viable and sustainable in the longer term may be taken forward as proposals for change to improve respite services.

Any proposals for significant change will be subject to formal consultation with people who use respite services and the wider public. If any proposals for change are not significant, these will be subject to a further period of informal engagement, as opposed to formal public consultation.

The CCGs have produced a ‘‘Respite Needs and Responsibilities’ paper. This contains background information that will help people take part in the review.

We are holding an extra discussion drop-in event. The additional discussion event will take place on Friday 24 February 2017 from 10am to 12.30pm at Cumberland Resource Centre, Chelmsford Road, Middlesbrough, TS5 6PH.

If you have any questions, or would like further information, please contact the Communications and Engagement Team on 0191 374 2795 or by email at NECSU.Engagement@nhs.net.

Please make sure we receive your completed questionnaire by Monday 27 February 2017.